2023/2024 Recipients

It’s been too long since I have updated on all the absolutely WONDERFUL things we have had the opportunity to do in the last year and a half! Thanks to many of you communicating needs of your family, friends, coworkers, and neighbors, we have been able to impact people locally as well across the United States. What a privilege it has been to be a part of it all. Here is a summary of what we have been up to at Landon’s Legacy Charitable Foundation.

Three precious girls Mia, Max, and Presley have all had to deal with their fair share of medical problems. Sweet 6-month-old Mia Grace has had multiple surgeries and prolonged NICU stays and a roller coaster of recovery, 7-year-old Max has been in treatment for Leukemia, and Presley, also 7, has been treated for a rare form of cancer and has also undergone an extremely complex surgery. We have had the opportunity to provide support for the parents of these warriors to take extra time off work, provided gift cards for meals during long hospital stays, gift baskets of toys, crafts, and anything to take their minds off of their circumstances. All three fighters are currently getting great reports and we LOVE to hear it!!

We were so happy to be able to provide the deductible for Shauna and Joe to provide 6-year-old Will with a safety bed in order to keep him safe at night and help Shauna and Joe get a full night’s rest!

We provided assistance for three families that needed help with medical bills associated with extended time off work for treatments as well as one traveling to Mayo for a very valuable second opinion.

We donated to funeral expenses for the unexpected loss of a 19-year-old boy in a car accident.

We provided a Christmas tree and several ornaments to a family starting a memorial tree, just like Landon’s, in honor of 2-year-old Jameson that was in a tragic accident.

We donated to a mother that needed lifesaving surgery to remove a brain tumor shortly after delivering her baby and had exhausted all of her medical leave.

And lastly, in true Landon form, we bought a basketball hoop for Henry. A baller at heart that loves nothing more than to watch, play, and learn about basketball. He just had a major hip surgery and is home recovering, but we know he will be out shooting hoops again soon!

Thank you to all of you that have made these donations possible. The thank you cards, texts, messages, and pictures we received fill our hearts with joy as we remember Landon and all that he endured as well. We see ourselves in each of these families as we hear of their struggles. We know firsthand how appreciated each gift is as we were once in their shoes.

2023 Annual Golf Tournament

Registration for our 5th annual golf tournament will open July 1st at 8:00am by following the link on this website. Register early as spots fill up fast! Please note the change in venue to Tiffany Springs Golf Club. Registration will start at 8:00 in the clubhouse with a shotgun start at 9:00. We look forward to another successful tournament. Landon would be so proud of this event. Thank you for making it something to look forward to year after year. If you have items to contribute to our raffle or silent auction please contact us!

2022 Landon's Legacy Golf Tournament success!

The 2022 Landon’s Legacy Golf Tournament was presented by the Doll Family and New Mark Homes. Also supporting the tournament, with GOLD level sponsorship, was JARBO, TPC Interiors, Community Mortgage, Smoothie King, and KC Sports Tournaments. We had a record sell out for the tournament with registration filling up in just 3 days! We were able to raise over $17,000 for the charity. It was a beautiful day full of family and friends showing up to help us carry on Landon’s Legacy. This day brings our family an incredible amount of joy. With your support, we have been able to extend financial assistance to several local families over the past year. More information on those special families in the next update. We hope to see you on Oct 14th for the 5th annual Landon’s Legacy Golf Tournament.

2021 recipients

We always love introducing you to some of the families we have helped throughout the past year, because it is through your donations that we are able to meet these needs. First, I will introduce Grant, who is a vibrant 6-year-old from De Soto, KS. Last year, he was diagnosed with aplastic anemia; a life-threatening failure of his bone marrow. He was almost immediately in need of a life saving bone marrow transplant. Among his many obstacles have been relocating to Milwaukee for his evaluation and treatment along with finding a perfect bone marrow match. Grant and his family, including 10-month-old baby brother, have had to temporarily commit to living in Milwaukee for the foreseeable future. Grant’s grandparents have willingly relocated there as well to take care of the baby while his parents are with Grant. We have been honored to help provide this family with hotel rooms, gas/travel expenses, as well as covering their airbnb for the month of February. We keep in close contact and stay up to date on Grant's progress. We wish Grant the best and hope that as his body continues to heal he will eventually get to come back home to Kansas City.

We have also had the privilege to donate to the medical expenses of two Platte County residents that have had long and complicated fights with cancer, requiring leave from work, travel for medical care, and increased demands on their families.

The Platte County community recently had a difficult and heartbreaking goodbye to one of our own PC Alumns, Matt Madill. At just 23-years-old, he fought an extremely difficult battle with leukemia.  We were honored to donate to his end of life care. Our hearts and prayers go out to his family as we know how devastating it is to lose a child. We will continue to pray for his family.

Finally, we contributed to the training of a service dog for Clark Tindall. Clark was born with Spina Bifida and struggles with ongoing seizures. His family is saving up to purchase and train a service dog to help predict seizures and increase Clarks quality of life. 

Even in the midst of what seems like a couple very difficult years we have found so much joy in continuing Landon’s Legacy. Each of these families have expressed so much gratitude toward our charity for the help offered to them in their greatest times of need.

Successful 2021 Tournament

After taking the year off for the pandemic in 2020, we decided we were going to do everything we could to pull off our annual golf tournament in 2021, as we missed the event so much! Not only did we get to host our golf tournament, we had overwhelming success! We accepted 34 team entries, had over 20 volunteers, and numerous community members that pulled together to host a wonderful event including delicious lunch and extremely successful silent auction and raffle. In total, we raised over $29,000 at the tournament alone. Adding this to our end of year donations, we had an unbelievable year raising over $40,000!!! Thank you to each of you for being a part of it!

Emma's Story

A Special Note From The Sederwall Family

Emma Grace Sederwall was born to Kyler and Becky Sederwall January 7 2020. She was born with jejunal atresia which is a complication of the intestine not allowing it to pass waste properly. Because of this she had to immediately have a surgery to create an ostomy. She spent her first 100 days of life in the NICU. She had to have a feeding tube placed as well as a central line to ensure she was getting the proper nutrition during all the transitions she would go through in the healing process.

Emma and her parents have been through so much in just over a year of her life. 6 surgeries to attempt to resect, divert, and reconnect her intestines. After several failed attempts at reconnecting her bowel her physicians wanted to wait an extended period of time before trying again.

However, in Gods perfect timing the family was randomly connected with another family that had similar experiences. They pointed them in the direction of a surgeon that gave them new hope and eventually reconnected sweet Emma’s bowel much earlier than expected. She will have a follow up appointment and surgery at the end of May for the final steps of reconnecting the bowel and having no external stoma.

Following that surgery she will eventually be able to get her central line removed as well as her feeding tube! Emma brings so much joy to her grandma which is how we were connected to Emma. It has been great to hear of the most recent developments and Emma making great strides to complete healing.

Gabe's Story

A Special Note From The Davis Family

Gabe had experienced pain in his left knee for 3 years; we thought it was likely a sports injury from lacrosse and/or wrestling. In September, his latest physical therapist felt a round mass on his IT Band and on October 2 Gabe was diagnosed with an ultra rare cancer - Synovial Sarcoma - which impacts 1 to 3 people in a million.

Thankfully, Gabe's cancer is only stage one and has not spread anywhere else. Our doctors at KU Cancer Center started with a plan to do 6 rounds of chemo (5 days of continuous chemo followed by 16 days off). Gabe finished 3 rounds and they repeated his scans right before Christmas. The cancer still has not spread and instead of 5 days of chemo they are cutting it down to 4 days. One day may not sound like much, but it's a big deal to us. After chemo ends in late February Gabe will have another surgery on his knee. Then they'll determine if he needs radiation too.

We're hopeful that he's past surgery and up and walking for prom and graduation in the spring. We have been overwhelmed by the outpouring of love and support from friends, teachers, classmates and lots of amazing people we don't even know in our beloved hometown of Platte City and from sports teammates and friends and family in the US and all over the world.

We never imagined we'd be on this side of the table facing cancer but we are grateful for the people and families who have walked this road before us that are checking in on us and sharing their experiences.

The generosity of the Landon's Legacy Foundation has helped us pay medical bills not covered by insurance, giving us one less thing to worry about.

Thank you from the bottom of our hearts!

With Gratitude,
The Davis Family

Mila's Story

A special note from the Mane Family

In the Spirit of Strength, after 7 years of praying to find the courage to walk this journey for a second time, Mila Clare Mane was born on November 12th, 2019. Her older brother was born with a congenital airway defect called Laryngomalacia and though we had hoped for the best, at just 2 weeks old it was confirmed that Mila was born with Severe Laryngomalacia, Torticollis with plagiocephaly, multiple midline defects, and severe obstructive apnea.

In the Spirit of Perseverance, as the world was bracing for a global respiratory pandemic, Mila had her first surgery to correct her airway defect at 12 weeks old. Her surgery was not as successful as we had hoped and it was confirmed she was aspirating into her lungs shortly after. She in turn had an NG feeding tube placed to help her eat safely.

In the coming weeks, Mila will be having another revision of her airway, along with a more permanent feeding tube placed in her stomach, and a surgical procedure to check for any underlying heart defects. She will have three surgeons performing seven procedures in all. Mila's weeks are filled with bouncing between specialists, feeding and physical therapy sessions, and many emergency room visits.

Through it all and in the Spirit of Hope, she has the biggest most beautiful smile a child could have. She giggles her way through life and is absolutely enamored by her older brother Marco who adores her. She has a glimmer in her eye that is a force to be reckoned with and I have every faith in the world that this difficult time will be only a small chapter in the amazing life she is going to live.

To the Jaros Family, and to Landon's Legacy Foundation we thank you from the deepest part of our hearts for the compassion, kindness, and comfort you have shown to us and to all parents who are walking difficult and uncertain paths with their children. We are forever grateful.  And we promise to honor Landon by raising Mila with the Strength, Perseverance, and Hope that Landon lived by in his beautiful 4 years of life. His spirit lives on through Mila and every child's life that he touches. 

Love,
The Mane Family