A special note from the Mane Family
In the Spirit of Strength, after 7 years of praying to find the courage to walk this journey for a second time, Mila Clare Mane was born on November 12th, 2019. Her older brother was born with a congenital airway defect called Laryngomalacia and though we had hoped for the best, at just 2 weeks old it was confirmed that Mila was born with Severe Laryngomalacia, Torticollis with plagiocephaly, multiple midline defects, and severe obstructive apnea.
In the Spirit of Perseverance, as the world was bracing for a global respiratory pandemic, Mila had her first surgery to correct her airway defect at 12 weeks old. Her surgery was not as successful as we had hoped and it was confirmed she was aspirating into her lungs shortly after. She in turn had an NG feeding tube placed to help her eat safely.In the coming weeks, Mila will be having another revision of her airway, along with a more permanent feeding tube placed in her stomach, and a surgical procedure to check for any underlying heart defects. She will have three surgeons performing seven procedures in all. Mila's weeks are filled with bouncing between specialists, feeding and physical therapy sessions, and many emergency room visits.
Through it all and in the Spirit of Hope, she has the biggest most beautiful smile a child could have. She giggles her way through life and is absolutely enamored by her older brother Marco who adores her. She has a glimmer in her eye that is a force to be reckoned with and I have every faith in the world that this difficult time will be only a small chapter in the amazing life she is going to live.
To the Jaros Family, and to Landon's Legacy Foundation we thank you from the deepest part of our hearts for the compassion, kindness, and comfort you have shown to us and to all parents who are walking difficult and uncertain paths with their children. We are forever grateful. And we promise to honor Landon by raising Mila with the Strength, Perseverance, and Hope that Landon lived by in his beautiful 4 years of life. His spirit lives on through Mila and every child's life that he touches.